MELBOURNE EVENT UPDATE!
WHEN Saturday February 7th, 7.30pm
WHERE Studio 3, Crown Entertainment Complex, Melbourne
WHAT Cocktail Event plus silent auctions, raffles, guest speakers, living with diabetes canvases on display and available for purchase.
Special appearances by world fitness model, MTV fitness coach and author of The Booty Bible, Miss Alicia Marie! You know, that girl with the BEST ASS IN THE WORLD?!
Plus award wining magician and mentalist Matt Tarrant
DJ Malpractice on the decks to entertain us all night, this is going to be a night to remember, so save the date guys, you're all invited!
Tickets are available here:http://www.gotinsulin.org/store/p6/Got_Insulin_2015.html
Group discounts available for 8+ tickets.
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I have been a Type One Diabetic for 9 years and I am using the pen method to control it, having on average 4 injections a day (3 of Novorapid after each meal and 1 of Lantus at night. All done in my legs.).
I was diagnosed at the age of 12. Like many other Type 1s, it came as a huge shock to my family and I and I was very close to death's doorstep. I remember feeling lethargic and dehydrated for 3 months prior to diagnosis. I had lost 15 kilos, putting me at 40kgs when i should have been 55kgs for my height. During the time, it did not help that i had a nasty lingering cold a month prior to my diagnosis. My parents took me to multiple doctors, each coming up with a different diagnosis. One said it was the cold taking its toll on my body, another said it was a chest infection causing the weight loss and constant tiredness, but no matter what antibiotics they put me on i was not getting any better. Another doctor claimed I was healthy and there was nothing wrong. Then one day, i started vomiting profusely. I couldn't keep any food down, I could barely stand up and found it difficult to focus on anything. My parents took me to hospital, despite my protests that I was fine and it was probably something I ate. From here it gets a little fuzzy. I remember waking up about a day later in the intensive care unit at Flinders Medical Centre. I was later told I had lost conciousness upon admittance, had a sugar level in the forties, had a dangerous level of keytones and was suffering the early stages of liver and kidney failure. After i had stabilised, i was moved to the children's ward where i spent a week learning all that there was about being a type 1 diabetic.
It was a huge shock to my mental state and shortly after being discharged hospital i became very depressed. I was uncooperative with my parents, hostile towards others, constantly crying because i did not fully understand what was wrong with me and why this had happened to me. I was first using the rocket to administer my insulin, twice a day, but it became too difficult for me to handle. I had a huge fear of needles and the sound the rocket makes when you press the button and how violently it goes into you only made it worse. It would take an hour for my parents to coax me to lift up my shirt and expose my stomach for the needle. This usually resulted in me becoming hysterical. I missed so much school and felt isolated. After a while it got easier and i learnt to live with it, but i was always bitter and resentful towards it. Slowly i began to regain the lost weight, went back to school, even went overseas a year later (my parents promised me a family holiday if i would really try and adapt to my new living condition) Over time, i converted to the pen method of injecting and found it so much easier as i had control on how fast the needle went in and at what pressure.
Before i knew it the years had flown by and i was doing ok, although i have had on going troubles with my levels dropping too low. I have overcome my fear of needles, (albeit i still hate blood tests. Anything going in, not a problem. Insulin, vaccinations, piercings, tattoos no issue. Anything going out - i faint.) i have mastered travelling overseas and adapting to new time zones and I have found an amazing man who has embraced my diabetes as a part of life and helps me with pretty much anything i need (sugar level checks, getting my pens ready, making me a sandwich in the middle of the night if i drop too low). I had learnt to accept it as life and can't remember not having to do an injection.
However, as all diabetic know, its a very fine line between too much insulin, not enough insulin and just the right amount. In june last year, i had a seizure in my sleep as a result of my sugar level dropping too low. I have been diagnosed with hypoglycemic unawareness, which means my body does not register when my sugars are low. Half the time when my levels are low, i have only picked up on it when i have done my blood level checks approx every 3-4 hours. Since the seizure i have had an up and down attitude towards my diabetes. I am sometimes terrified of going to bed and not waking up, which results in me staying up all night. Most days now i am good with it, always conscious of it being there, but not letting it get to me like it used to. Thankfully i have such supportive family and friends, especially my partner, who continuously help me work through it all. Hopefully in june this year i will get the all clear from my specialist and be able to get my driver's licence back.
What i really want more than anything is to make people open their eyes up and see that living with diabetes is easier said than done. People have no idea how much effort we put into ourselves so we can keep living. You don't realise how much your body does automatically until it stops.
'm going to do a little #flashbackfriday post relating to Type 1 Diabetes and pregnancy. Basically I am just sharing my pregnancy and the complications I experienced. I'm interested in hearing other T1D's experiences with pregnancy, if you would like to share your story with me please email firstname.lastname@example.org
**All views in this post are my own, I am not a medical professional.
In 2008 I miraculously fell pregnant with Indiana Danger.
I was petrified. I was not in great control of my Diabetes and I knew there were lots of risks associated with Type 1 and pregnancy.
Off to the doctors and all the specialists I'd been avoiding..
At 8 weeks pregnant my HbA1c was 9.6 and I'd put on 10 kilos..
I was made aware of the potential risks with child birth.. Specifically Type 1 Diabetic babies can be larger than the average with broader shoulders which can be risky with a natural birth.
We aimed to get my HbA1c down to about 7.0.. Booked in a c-section for November 27.
In the next month I experienced 2 of the worst Hypos I've ever had. One ended with me wandering the streets while we were moving house, that ended with me walking in to a glass door and many other hilarious moments.
The second was a few weeks later. I've told this story before and it never gets easier. My dog woke up my husband by barking and running into our door.. I was comatose, choking on my own saliva with a BGL of 1.1.. My husband did all the right things and I was ok and so was Indie. (obviously) I have no memory of this Hypo..
Back to all the doctors and specialists again.. I am told Indiana is making enough insulin for both of us so I should halve my insulin.
At 5 months pregnant my HbA1c was 5.5 with no further weight gain.. Everything looking great for unborn Indiana. Then the strangest thing happened.. I got told my blood sugars were too low. TOO LOW? What? Never in my life have I been told my levels are too low. I was told i needed to cut back on my insulin AGAIN.
I had gone from something like 40 units to 15 in the space of 3 months.
6 month mark comes along.. I'm pretty much hospitalised from this point on with kidney infections.. Strict bed rest and wearing one of those super attractive body stocking things.. Those who know me know how small my hips are. I struggled to stand in the end. "Your baby is too big for your body because he is making so much insulin". By this time I was having no fast acting insulin and something ridiculous like 2 units of Lantus per 24 hours.
HbA1c is now 5.0.. Still too low. Not much I can actually do about it at this stage.
32 weeks pregnant and I am told Indiana has stopped growing as my placenta isn't feeding him. GREAT.
We bring forward the c-section date, I have steroid injections to help Indianas lungs mature. I am told he will be in hospital for 5 weeks once he is born.
This is the most confusing part of my pregnancy because I'm now recording blood sugars of 14.5 etc and I have nurses being rude to me about it.. FYI 2 nurses were banned from my room for their attitude towards me and my Diabetes.
5 days later and apparently I am in labour.. I think I had 2 real contractions.. Yeah, 2 was enough for me. OUCH. Rushed off for an emergency c-section at midnight.. Sunday 12:15am October 19, 2008 Indiana Danger enters the world, and he is PURPLE. What? No one told me babies are purple. I had a little melt down, but was assured it was normal.
6.5 weeks premature.. He weighed 6 pound 8. He was in the NICU for 24 hours then in the regular nursery. He was discharged at 48 hours. His lungs were perfect, which he thoroughly enjoyed showing off with his little pig squeal/cry. Still does actually.
I was really worried about my diabetes control once I found out I was pregnant but for some reason it took care of itself. I call Indiana my little miracle baby because for 5ish months he was making enough insulin to keep me alive without injections. It was one thing off the list I didn't need to stress about. I don't know about everyone else but to me that's pretty amazing.
I gained 10 kilos in the first 10 weeks of pregnancy. At 30 weeks I had gained 13 kilos total. When Indiana was born my total weight gain was 9 kilos. I walked out of hospital (walked/hunched/the awkward c-section hobble) at my pre-pregnancy weight but it was spread out completely differently.
Getting back to normal with my Diabetes control was much easier than I had anticipated.. There was lots of pressure on me to switch to a pump (still is, still wont) but I managed just fine with pens.. Pens, that I had finally started using instead of syringes at 30 weeks pregnant, haha.
Having Indiana was probably the biggest wake up call for me with my Diabetes. I am now responsible for another life. How can I look after him if I am not looking after myself?
Ruby is 6 years old and will be part of our Got Insulin calendar series. This is her story submitted by her mum Ashlee.
How long you have been T1D Diagnosed November 13 2010, nearly four years.
How you treat your T1D (pump, injections) three shots a day on two different insulins, pen shot and syringes.
Your story/thoughts on living with T1D
As Ruby's mother I can tell her story, it was the most devastating and overwhelming thing to see a 2 year old being held down by five different people so they could get the lines in. She was so dehydrated they had to put them in both arms and legs as they couldn't find veins for ages. She was in the ICU overnight and was hallucinating, she didn't even know who I was, at that point I felt like the worst parent in the world, that it had gotten to that stage. We were told if she had come in a few hours later it would have been too late. She was in the hospital for a week, three other kids had been diagnosed around the same time as her and she was the eldest.
Its been nearly four years and she is coping well, a happy and healthy primary school student.
In fact, since she started school her routine has become much easier and the school is so good with her, they record her readings for me to take to her checkups. She knows she is different to the other kids, I have to go in at lunch time and give her her shot, all the kids know me and see me, its normal for them now. But I'm afraid of the first time she asks to have a sleep over or go to a birthday party where all the kids will have sugar filled cake and lollies. She is coping well, she doesn't know anything else, she understands that she can get sick if she eats too much sugar or not enough but being a picky six year old its still a battle.
I wish I could take it on myself, its been a battle and I know I will always worry about her, even when she is an adult. I still wake up in the middle of the night scared that she won't ever wake up, but I guess that will be something that will happen until a cure is found.
Here it is! Our next event. Our VP came up with this pretty great fundraising idea. Since Brett doesn't have Diabetes he was unsure how he could directly contribute to Got Insulin. He decided to show his support in a different way, so he came up with the following solution..
These two on the left, one being my Dad (Ian) and the other Vice President of Got Insulin (Brett) are going to lose their beards in the name of charity! Cut throat razor style! Completely bald.. Like their heads.. har har.
This is no small feat for either man.
Young Brett has been rocking the facial hair since he came out of the womb... Well maybe not that long but most certainly since he was in his early teens on and off and consistently since he was 16. I can't remember seeing him without some form of stubble.. I hear his mum is very keen for him to loose the beard. Brett wants to raise at least $2000 for Got Insulin by shaving off his rather large beard.
Ian (so strange to type Ian, I want to say Dad) has been bearded with at least stubble since 1977. Thats 36 years. I think in my almost 29 years on this earth I have seen him once without complete facial hair., but it definitely wasn't cut throat. I'm almost positive my 27 year old brother has not seen him without a beard. So all in all this is going to be very interesting!! Ian/Dad has decided his fundraising goal is $1000. We will be opening up a fundraising page next Monday (May 12th) for you to donate to. The big DIA-BEARD-ES for DIABETES is going to happen at a Got Insulin Family day. Date tbc.. (July 13th or August 10th) You'll be able to bring along the family, meet these hairy men, there will be a jumping castle, football clinic and a sausage sizzle. Because we all love a BBQ. The shave will take place after lunch and both these amazing men are going to walk away with very cold, naked faces, all for a good cause. Get behind them and show your support for Got Insulin by making a donation!
More details will be shared once confirmed. Stay tuned!
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See that total babe on the left? Here's her story...
"I was diagnosed with Type 1 Diabetes at 13 years old. I'd lost 7 kilos in a week, weighing only 32kilos. I looked terrible, was drinking a lot, going to the toilet a lot and just felt sick when eating food. I remember being at my friends house and all I wanted was jelly because I felt so dry.
My mum got my brother to take me to see the familydoctor, I told him I wasn't feeling well, couldn't eat and was drinking a lot. He told my brother, based on my obvious weight loss I was anorexic, and there was nothing he could do to help. Obviously my reaction to this was 'No I'm not!!" But I guess that's the normal reaction to someone who has an eating disorder so he sent us home.
The next day Mum was trying to get me to eat a cheese sandwich, and I just couldn't stomach it so she took me back to the same doctor and said she thought something else was wrong, not that I was anorexic. She told him about the peeing and drinking and he checked my sugar. He said it was above 40, and if I had have left it another day I'd probably be dead. That was it, he sent us straight to the hospital. I was scared, I had no idea about diabetes, my mum was crying so I knew it was serious.
I spent a week in hospital, on a drip, getting my sugars checked throughout the nights. It was a HUGE learning curve. They wouldn't let me leave the hospital until I would inject myself. I remember the first injection took me about an hour to work up the courage to do. I was terrified of needles! I still hate getting blood tests!
I was vey lucky to have my mum help me through it. The last 2-3 years have probably been the hardest. Moving out of home, my body going through changes, having to organize my own food and I'm sure the next few years will bring more challenges as my partner and I start trying to have a baby. I've only had to be hospitalized about 4 times over 11 years, so I think I'm doing pretty well.
There are days when I get depressed when I realize I'm going to be stuck with this the rest of my life, always worrying if I'm going to go low in my sleep and not wake up. However I'm lucky to have people in my life who help me through those days. Got Insulin has been a huge help for me, hearing other peoples stories and realizing I'm not alone in how I feel and what I'm going through, so thanks for starting the organization Zoe! Hopefully one day there will be a cure!"
You are a fighter Amy! You and your Mama looked absolutely gorgeous the night of the ball! *drools* Thanks again
X O X O
So as you can see we've been hard at work putting together some fancy photos.. Here is some more information.
Later this year we want to release a calendar and hold an exhibition featuring T1D's in their everyday life.
Example: the images you have seen so far are me and I work in the beauty and fashion industry so I'm surrounded by the things I use everyday (make up kit, clothes, Chanel hand bag, ha ;) )and the insulin that keeps me going.. You'll notice in one of the images I am doing one of the 6 injections I do daily to stay alive.
If you're a sports person we'd probably do an image around that. An artist, an image involving your art etc etc.
The photos will all be shot by the very talented Julia Thomas and all make up and styling will done by myself. http://www.juliathomasphotography.com.au/
What do we want from you?
Well if you are a T1D or you know someone who is who might want to be involved then share this blog post with them.
If you are interested in being involved as one of the subjects/models please send the following information to email@example.com by FRIDAY MAY 2nd.
How long you have been Type 1 Diabetic
How you treat your T1D (pump, injections)
Your life with T1D
**You must be located in Adelaide or willing to travel to Adelaide (at your own cost) and be available to shoot before the end of September 2014**
We are also looking for a toddler/child with T1D to be in the exhibition and an elderly male/female to show how it affects all ages. If you are a parent willing to give permission for your child to be involved then the above questions are slightly different.
All successful applicants will be notified by Friday March 9th via email.
Here we are, 2 weeks post event and I finally have time to write a quick blog.
Firstly I'd like to thank our guest speakers Ami James and Darren Brass for making the huge trip all the way from Miami to support Got Insulin. I'd also like to thank Mix 102.3, special mention to Tim Ward for his hard work behind the scenes, Wine Direct and Exquisite Timepieces for their sponsorship and donations. Thank you all for your time and your support. I appreciate it more than words can say.
Leading up to the event a few things went wrong (few = anything that could, did) that were out of everyones control but we got them sorted, we went ahead, got frocked up and a great time was had by all. The photo booth was a huge hit (a must have for all events) as was DJ Mal-P. Man knows how to get people dancing!
I want to thank everyone who attended the ball, everyone who donated their time, items and their dollars. Special mentions to Adam Faithow and Trevor Clashom for their MCing at the end of the night, Julia Thomas Photography for the official photos which will be up and available to view and purchase later this week, In the Booth for the epic photo booth, (pics also being posted later this week) and last but not least my family and friends.
Next years event is already in the works, it's going to be a bit different, location and event wise.. Watch this space it's going to be a bit of a surprise!
In the meantime if you would like to donate to Got Insulin you can do so by clicking the donate tab and selecting your preferred method of payment.
Can't wait to see you all next year!
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Hey hey! It's been a while. We have been super busy here at Got Insulin in the last few months putting together the Got Insulin Inaugural Charity Ball.
Are you excited? You should be.
It's going to be a really fun night. Hosted by Danny Frawley, with special guests Ami James and Darren Brass.
Not only will Ami and Darren be attending but you will have a chance to get tattooed by them. We will be auctioning off one spot with each of them on the night. A once in a lifetime opportunity! If that's not enough incentive we also have holidays to Pt Douglass, Thailand and Italy for auction, Andy Warhol art, heaps of sports memorabilia, custom painting by Steen Jones. The list goes on.
There will also be numerous raffles drawn throughout the evening.
On that note, we are still actively searching for donations for the auction and raffles.
How can you help?
Ideally things we are looking for for the auction portion include:
Jewellery, a bike (mountain/road whatever), artwork, holidays, flight vouchers,electrical goods, landscape packages, sporting goods, tickets, anything that you think could do well at auction. If you work for someone who can help or know someone in an industry that might be willing to help out.. Please contact me for more information. I can send you a sponsor/donation proposal contact the business/person direct.
For raffle prizes I am after smaller things, vouchers, clothes, accessories, gym memberships, beauty packages, etc.
Just to let you all know there are only 30 tickets left to the ball so get in quick as it will sell out! Tickets are available on the main page!
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