'm going to do a little #flashbackfriday post relating to Type 1 Diabetes and pregnancy. Basically I am just sharing my pregnancy and the complications I experienced. I'm interested in hearing other T1D's experiences with pregnancy, if you would like to share your story with me please email firstname.lastname@example.org
**All views in this post are my own, I am not a medical professional.
In 2008 I miraculously fell pregnant with Indiana Danger.
I was petrified. I was not in great control of my Diabetes and I knew there were lots of risks associated with Type 1 and pregnancy.
Off to the doctors and all the specialists I'd been avoiding..
At 8 weeks pregnant my HbA1c was 9.6 and I'd put on 10 kilos..
I was made aware of the potential risks with child birth.. Specifically Type 1 Diabetic babies can be larger than the average with broader shoulders which can be risky with a natural birth.
We aimed to get my HbA1c down to about 7.0.. Booked in a c-section for November 27.
In the next month I experienced 2 of the worst Hypos I've ever had. One ended with me wandering the streets while we were moving house, that ended with me walking in to a glass door and many other hilarious moments.
The second was a few weeks later. I've told this story before and it never gets easier. My dog woke up my husband by barking and running into our door.. I was comatose, choking on my own saliva with a BGL of 1.1.. My husband did all the right things and I was ok and so was Indie. (obviously) I have no memory of this Hypo..
Back to all the doctors and specialists again.. I am told Indiana is making enough insulin for both of us so I should halve my insulin.
At 5 months pregnant my HbA1c was 5.5 with no further weight gain.. Everything looking great for unborn Indiana. Then the strangest thing happened.. I got told my blood sugars were too low. TOO LOW? What? Never in my life have I been told my levels are too low. I was told i needed to cut back on my insulin AGAIN.
I had gone from something like 40 units to 15 in the space of 3 months.
6 month mark comes along.. I'm pretty much hospitalised from this point on with kidney infections.. Strict bed rest and wearing one of those super attractive body stocking things.. Those who know me know how small my hips are. I struggled to stand in the end. "Your baby is too big for your body because he is making so much insulin". By this time I was having no fast acting insulin and something ridiculous like 2 units of Lantus per 24 hours.
HbA1c is now 5.0.. Still too low. Not much I can actually do about it at this stage.
32 weeks pregnant and I am told Indiana has stopped growing as my placenta isn't feeding him. GREAT.
We bring forward the c-section date, I have steroid injections to help Indianas lungs mature. I am told he will be in hospital for 5 weeks once he is born.
This is the most confusing part of my pregnancy because I'm now recording blood sugars of 14.5 etc and I have nurses being rude to me about it.. FYI 2 nurses were banned from my room for their attitude towards me and my Diabetes.
5 days later and apparently I am in labour.. I think I had 2 real contractions.. Yeah, 2 was enough for me. OUCH. Rushed off for an emergency c-section at midnight.. Sunday 12:15am October 19, 2008 Indiana Danger enters the world, and he is PURPLE. What? No one told me babies are purple. I had a little melt down, but was assured it was normal.
6.5 weeks premature.. He weighed 6 pound 8. He was in the NICU for 24 hours then in the regular nursery. He was discharged at 48 hours. His lungs were perfect, which he thoroughly enjoyed showing off with his little pig squeal/cry. Still does actually.
I was really worried about my diabetes control once I found out I was pregnant but for some reason it took care of itself. I call Indiana my little miracle baby because for 5ish months he was making enough insulin to keep me alive without injections. It was one thing off the list I didn't need to stress about. I don't know about everyone else but to me that's pretty amazing.
I gained 10 kilos in the first 10 weeks of pregnancy. At 30 weeks I had gained 13 kilos total. When Indiana was born my total weight gain was 9 kilos. I walked out of hospital (walked/hunched/the awkward c-section hobble) at my pre-pregnancy weight but it was spread out completely differently.
Getting back to normal with my Diabetes control was much easier than I had anticipated.. There was lots of pressure on me to switch to a pump (still is, still wont) but I managed just fine with pens.. Pens, that I had finally started using instead of syringes at 30 weeks pregnant, haha.
Having Indiana was probably the biggest wake up call for me with my Diabetes. I am now responsible for another life. How can I look after him if I am not looking after myself?
So as you can see we've been hard at work putting together some fancy photos.. Here is some more information.
Later this year we want to release a calendar and hold an exhibition featuring T1D's in their everyday life.
Example: the images you have seen so far are me and I work in the beauty and fashion industry so I'm surrounded by the things I use everyday (make up kit, clothes, Chanel hand bag, ha ;) )and the insulin that keeps me going.. You'll notice in one of the images I am doing one of the 6 injections I do daily to stay alive.
If you're a sports person we'd probably do an image around that. An artist, an image involving your art etc etc.
The photos will all be shot by the very talented Julia Thomas and all make up and styling will done by myself. http://www.juliathomasphotography.com.au/
What do we want from you?
Well if you are a T1D or you know someone who is who might want to be involved then share this blog post with them.
If you are interested in being involved as one of the subjects/models please send the following information to email@example.com by FRIDAY MAY 2nd.
How long you have been Type 1 Diabetic
How you treat your T1D (pump, injections)
Your life with T1D
**You must be located in Adelaide or willing to travel to Adelaide (at your own cost) and be available to shoot before the end of September 2014**
We are also looking for a toddler/child with T1D to be in the exhibition and an elderly male/female to show how it affects all ages. If you are a parent willing to give permission for your child to be involved then the above questions are slightly different.
All successful applicants will be notified by Friday March 9th via email.
Hey hey! It's been a while. We have been super busy here at Got Insulin in the last few months putting together the Got Insulin Inaugural Charity Ball.
Are you excited? You should be.
It's going to be a really fun night. Hosted by Danny Frawley, with special guests Ami James and Darren Brass.
Not only will Ami and Darren be attending but you will have a chance to get tattooed by them. We will be auctioning off one spot with each of them on the night. A once in a lifetime opportunity! If that's not enough incentive we also have holidays to Pt Douglass, Thailand and Italy for auction, Andy Warhol art, heaps of sports memorabilia, custom painting by Steen Jones. The list goes on.
There will also be numerous raffles drawn throughout the evening.
On that note, we are still actively searching for donations for the auction and raffles.
How can you help?
Ideally things we are looking for for the auction portion include:
Jewellery, a bike (mountain/road whatever), artwork, holidays, flight vouchers,electrical goods, landscape packages, sporting goods, tickets, anything that you think could do well at auction. If you work for someone who can help or know someone in an industry that might be willing to help out.. Please contact me for more information. I can send you a sponsor/donation proposal contact the business/person direct.
For raffle prizes I am after smaller things, vouchers, clothes, accessories, gym memberships, beauty packages, etc.
Just to let you all know there are only 30 tickets left to the ball so get in quick as it will sell out! Tickets are available on the main page!
ex oh ex oh
As per my previous blog post you will know I have been in America for the month of November. While I was there I caught up with the man himself, Ami James. We talked tattoos, (I got tattooed) Australia, Got Insulin and we talked Type 1 Diabetes. Ami told me some of his experiences with watching his long-time friend and co-attendee of Got Insulin Inaugural Charity Ball, Darren Brass and his T1D. Now I've had T1D for 16 years. I thought I had seen and heard it all. I was wrong. I was shocked, left speechless by some of the stories Ami shared with me.
I can only hope that by creating Got Insulin and holding events like this we can raise awareness for what can happen to you if you have T1D. Not only what can happen to you, but how it affects your family and friends. You will hear some of these stories at the Got Insulin Inaugural Charity Ball. Parts will shock you. Some of it is hard to hear. It was hard for me to listen to without getting emotional. But it is the reality.
So if you have T1D, Type 2 Diabetes, Gestational Diabetes, know someone who does, or don't know much about it but want to learn. And of course get dressed up, have an amazing meal and hang with some pretty cool people... Then get along to Got Insulin Inaugural Charity Ball on Friday March 7th at the Stamford Grand.
Tickets are available at Venue Tix Kiosks/Counters or online here.
Got Insulin Inaugural Charity Ball presented by the Stamford Grand.
A black-tie ball with special guests Ami James of Miami and New York Ink and Darren Brass of Miami Ink..
Standard Ticket: $120
Table of 10: $1000
3 course meal, entree, main, dessert
Beverages - premium wine, beer and soft drink
Entry into door prize raffle
Ball + After Party Ticket: $150
Table of 10: $1300
Entry to after party from 11:45pm
3 course meal, entree, main, dessert
Beverages - premium wine, beer and soft drink
Entry into door prize raffle
Access to private VIP after party and drink specials.
*tickets are limited
As some of you may know, I have spent the past month in America.. That's 4 different time zones and 6 injections a day.
Complicated?! Well, it was the first time, I feel like I've almost mastered it now. Travelling locally with Type 1 Diabetes is hard.. Travelling overseas is even harder. I have managed to control my T1D quite well over the 4 time zones I visited this past month. Some helpful hints for fellow travelling Diabetics who are still old school like me and use pens or syringes. .
Even if I'm struggling with jet-lag... Wake up at 12pm - inject. Still up at 12am - inject.
Wake up at 9am - inject. 9pm - inject. 12 hourly. Like clockwork. Much easier to manage and keep up with rather than trying to force yourself awake at 7am etc etc..
Make sure you stick to your injection schedule as closely as possible. A few hours here or there shouldn't be a problem. (Note I am not a doctor, if you have good control of your T1D this should be fine. If you have poor control you should set an alarm to make sure you don't miss any injections or BSLs)
Luggage gets lost. Bags get misplaced. Don't be caught short. I make sure to have 2 of each pen in my hand bag, plus needles. In my checked luggage I will carry double what I know I will need. I will also pack an extra box of insulin and needles in my husbands luggage just in case mine gets lost.
That's about all I have on travelling tips. Pretty simple. Stay safe!